msjorje: (dreads 01)
I had no idea lab results would be available so fast! I might have gone 2 days ago, had I known. We just went this morning around 11. I was frightened to hear the doctor's voice on the phone when it rang at 3! (Doctors don't call unless there is something wrong, right?)

Spencer has a "presumed iron deficiency." [This is because] he has Anemia + his MCV (Mean Corpuscular Volume or size of his red blood cells) is 53. Our Endocrinologist didn't have the normal range numbers in front of him, but he thinks the low end is in the 70s. (Google tells me the low end of normal for adults is 80.)

He even conferred with his best friend, a Pediatric Hematologist! His friend recommended Spencer take his iron supplement (currently ½ a Flinstone w/Iron) *twice* per day for 1 week, then reduce to the normal dose (½, 1/day). They want to re-check Spencer's levels in 2 weeks.

Let's see, I asked the Pediatrician about anemia (via email)! I even mentioned the hair eating to the Endo. I reminded him of that and he was actually kind of fascinated. Big thanks to connecting with other moms of children with DS via the internet! And pat my own self on the back for sticking to my guns and chasing answers!

He also suggested bumping Spencer's Atenolol up to a full pill, in hopes that gets up some rest! (which was what I called and asked to do!) Atenolol is a Beta Blocker being used to treat hyperthyroid *symptoms.*

Wow! Lots of info and new things to try! Spencer has already been taking Flinstones with Iron (1/day) for... 4 days. I wonder what his numbers would have been a week ago. Scary. Doctor said he noticed Spencer looked pale. Um... I make WHITE babies. They're always pale, so I guess I didn't notice.
msjorje: (mommy)
Sasha had her first dentist appointment on Monday. She did well. She doesn't have any cavities! Considering we were sucking at dental hygiene there for a while and considering Elmo & I have poor dental health... it was a miracle. Back in 6 months.




Meanwhile, Spencer has started teething already. I didn't expect it so soon. I've asked around and I can expect a LONG wait for his teeth to actually cut through (due to the DS). Most moms said 1st cut tooth cut around 1 year. One mom said 18 months. Another mom said her kid's first tooth didn't cut until they were beyond the 2nd birthday!!

He bites down on my nipple and more recently he hasn't wanted to stay on the breast. He will chew HARD on our fingers, too. I'm going to get teethers into the fridge as soon as I dig them out from storage.




Tyler also had a dentist appointment recently. She has gotten to a point where she has a lot of anxiety and refuses to open her mouth. We'll be going back soon and they will drug her to help complete her cleaning and examination.

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msjorje

January 2015

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